weird day

My never-fail oatmeal, failed this morning. Half way through she just clammed up. It was the day I was to go to church, and she didn't eat. OH CRAP!!! Nic came over to sit with her so that I could go to church, and she WON'T eat. She does that smile that creeps me out, and by the way my sister knows that smile. At least she ate a normal dinner and even dessert. I even think when I asked if she was comfortable and she said no, I think she was communicating with me. I did adjust the bed and asked again, and she just smiled. I'm not sure.

She hasn't talked much these last few days. Not even babbling, is this the real beginning of the end? Am I ready? I don't think so. I tell her that we are moving in a few months, that we will have a home again, one that is ours. NO TRAIN noises. Better neighborhood. Maybe even help with her. Give her a real bath. Something I can't do on my own. Even better food. I didn't bring all my kitchen stuff to this house knowing that I was moving so soon. I miss a nice kitchen with all my "stuff". You never know what you'll miss until it's not there. It's not that I can't cook without it, just that those little things are what you miss. I made a really bad cheesecake (box mix) thinking she would like it. I'm not sure, perhaps it was just a different texture, and cold.

Tomorrow is another day...

what a difference you've made in my life

there's an old country song that the chorus is, what a difference you've made in my life, you're my sunshine day and night. it's a positive song of love and gratitude. I'm not a country music fan, that's all that my mom listened to (that, and old time gospel) and therefore, it's NOT one of my favorites.

It's Sunday and the kids are coming over for dinner. It's a good day.

With that in mind, that song came on and mom was giving me that "look" the one I still don't know what it is. In the last few days she has called out my sister's name, nothing more than "Diane". I know that she loved her, I know that she would expect her to care for her in this awful time of life. After all she is trained in it. This is what she has done for so long. I have always admired my sister for that. I'm glad that she was able to be the last voice, the last touch, the last one to say that they were loved before they passed away. What a gift she has. Now the table is turned and I hope that I am equip for it. Mom never loved me the same, not having a pity party, just the truth of it. She wasn't there for me like she was with Diane, this is not contention between my sister and I, in fact I think it brought us to a better understanding of each other much later in life. We have such different memories of the same thing, not just a bit different but grand canyon different. She remembers our folks as giving us a great musical backdrop. I remember dad's elevator music (no really, do you remember Muzak (sp), once my dad brought me into the garage, his hobby shop, and said now this is music, it was the Beatles song, Let it Be. I laughed and sung the rest of the song, and told him it was an abomination of the song. I didn't like the Beatles, but knew the song. ) and occasionally big band, mom was all country and gospel. So it's a long way of saying my sister and i have very different memories. So, this song comes on, because I figure it's mom's music and she might like it, as I find myself singing the song, couldn't help myself, I thought, she has made a difference in my life, just not the kind I would ever want to give my children. On a happy note, I don't know if my sister and I would have gotten as close with out this turn of events. No. Not really a change of events, a turn. I must admit I wonder what kind of person I would have been with loving and interested parents. I know I have potential, and maybe this is the cosmic way of giving it to me. After all the three words i so desperately want to hear from her will never be heard, "please forgive me". I have said them often to my children, my father said them to me. I was 13 and he took me aside durning one of the times my parents were separated and using me as a mouth piece for both of them, and said "I'm sorry, I should have been a better father". That's all I needed to hear, and he was the only one who said "I love you" between the both of them. Perhaps that's why my relationship with my dad is so much stronger. She would never say those words, I don't know that she would have ever chosen to say them to me. I chose to say them each time I talk to my children, and many of my friends as well. But my children know that I still don't know how I could be so blessed to have those three call me mom. So, in so many ways on so many levels my mother did make a difference in my life, for the most part, of what not to be. She would rescue a stranger and ignore her husband and kids. It's such life of opposites. It must of taken it's toll. Well, I know it did.

I have so much more to work on in this life that I have been given. It's what I must give to myself first and then to my children. This gift we call self esteem, value and worth. My children have it. I tried to offer it as they were growing up, because of a toxic marriage for 18 years, they didn't see a lot of me knowing I had value, but I'm working on it. I want to become the person that they almost knew, strong and valuable. It started down the wrong road because of my parents and their choices, I was making headway until my last marriage, now because of my mom and all my mom issues, I have started the road again. This time with clear vision, and goals. This is not to say, it will be easy, and there won't be bumps (even big ones) on the way, but I know where I'm headed.

So this new path for me is discovery each day. What a difference you've made in my life, it's almost like a second chance, otherwise I could say, bitter, party of one.

crying or laughing

sometimes i can't tell. when i am out in the living room and i hear her get vocal, i used to run to her room and try to console her. most of the time it wasn't crying, it was this strange laughter. she has been more quiet than not lately. that makes me wonder. the past two days she has begun to be loud again. hospice can't help because she can speak 6 words or more. she can, it's just that they never come out at the same time. she may get 3 words to start a thought or sentence and then it's all babble. sometimes i think she knows what she is saying, and others (mostly) she doesn't. she was upset a few minutes ago, i went in and she settled down and i asked her if she would like to me leave the room, she said yes. did she mean it? did she know? i left, after i told her it would be ok.

at least she ate well this morning. she has been eating poorly this last week. i wanted to force feed her, then again, why am i doing that. my sister said that at the home that she worked at, they had to "make" them eat. that meant occasionally the persons lip would get cut by the spoon, i could see me doing that. wanting her to eat. she puckering up like she just ate a whole lemon. i know that this is what's going to happen, her memory to eat, or perhaps desire. in my mind i know that's what is going to happen. the problem is, that it will happen. it will be me that she won't eat for, me that can't get the food in, me that will have to watch her get thinner. she is VERY specific about this in her health care directive, NO feeding tubes. NOTHING. it's just that i have seen it for a week, and it's so much harder than i thought.

so back to oatmeal, that was the ticket. she eats oatmeal.

i know that i make her as comfy as possible, dry as soon as i can, feed good meals when she eats, i have the knowledge that i am doing the best that i can, otherwise i could say, bitter party of one.

2 months in and i want a day off

it's been 2 months and for the first time i really want a day off. not just a few hours, a day. a day that i don't have to think about anything that has to do with caregiving. where i can have my old life back. i know i signed up for this. she is my mom. it's only been 62 days with out a day off. but i want one. i'm selfish. i have been sick for a week. from dec 24th to even today i don't feel 100%. i don't know what it was, but it kicked my butt.